It’s early in the morning, much earlier than I usually get up, and I’ve already been up for over two hours. I woke up with a migraine and hip and back pain. Not a fun way to start the day. So I slipped out from under my weighted blanket (no small feat!) and came out here to the living room. At first, silly me, I didn’t think I’d be up long, so I left the bedroom in my shorts and t-shirt that serve as my pajamas. It wasn’t long before I greatly regretted that decision and snuck back into the bedroom quietly to change into warmer clothes. After having some cereal, I curled up on the couch with my heated throw, my heating pad, and my little heat-generating kitty. She is always very clingy in the morning.
Soon I felt a bit better, although my head still hurts. I had my Botox injections yesterday, and they take a while to kick in. I am beginning to get really tired, and I was considering going back to bed, but then I thought I might as well wait until I’m exhausted. That makes for better sleep. My husband is getting ready to go into work early today. He got up at 4:30 and ran on the treadmill for a bit. Soon he’ll be leaving; soon I’ll be all alone for a while. Then my sister is coming to visit! Yea!
I’m feeling a bit discombobulated lately. Yesterday my fibro fog was out of control. Every time I started to do something, I had to stop and think about what I had been doing, try to remember, get back on track. I wandered off track so many times I lost count! I had some moments of clear-mindedness, and there were some tasks I completed from beginning to end without problem, but overall, it was a mess. How will I know when I develop Alzheimer’s when I already can’t remember to put my shoes on before leaving the house? I think a lot of people with fibromyalgia ask themselves this at some point.
Last week I was at my rheumatologist’s office and asked the doctor to change my main medication. She then decided that since I have Crohn’s disease as well that it should be the GI doc’s decision. I left there annoyed but called the GI doc right when I got home. The receptionist said she could get me in on January 3rd. I just about blew my top! I need to change medications, not sit here twiddling my thumbs for 6 weeks. So I told her that I really needed to be seen and would see anyone who can help me. I’m glad to say I got an appointment for next Wednesday, but it’s with a nurse practitioner I don’t know. Is she really going to change my medication for me, or pass the buck like the last person? I am slightly frustrated. But I will advocate for myself. I am not waiting until January when I will just likely be a lot sicker then. So yeah, watch out infuriating healthcare people.